Category: Meetings

Des opened the meeting, and welcomed the new members.   Leaflets, handouts and books were made available for members to have a look at/take away, including the ARC booklet on Sjogrens Syndrome, which some people with fibromyalgia also suffer from.

Discussion took place on research into fibromyalgia, and Des spoke of work that has been done in Liverpool using functional MRI scans to look at levels of brain activity, similar to research done previously in the states. Discussion also took place on accessibility of medication through GP’s.

Phil asked what happens next after you are discharged from Pain Clinic?   Next step would be to return to your GP and ask for further help.   It may be helpful to refer them to the EULAR Recommendations if they are unsure what other help/medications may be used.   Strong opioids are not recommended for use with fibromyalgia, even though many people are prescribed these.

Read more: Report of Meeting 20th Sep 2010
 
Category: Meetings

Matters Arising from last meeting

Bank Account

Hazel, Allan & Phil were going round to bank with completed form and their ID after the meeting. This meant when Sara returned from England, she could take her ID to the bank and the account processed.

Weekly Donations/Donation to Cathedral

£14.45 received from members. £10.00 will go to the Cathedral as donation for the room, with the remainder to group funds. A donation of £50.00 has been given to the group by Des’ partner Fiona, as thanks to Allan for taking photographs for her.

Read more: Report of Meeting 16th Aug 2010
 
Category: Meetings

Walking directions from Gilmour street to St Mirin Catherdral.

Photo of the Parish Hall (Red Arrow) and walking directions and how to get into the car park on the right.

(Larger Image)

 

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • Sarah Hamburg, a trustee of FMA UK recently attended the Nice 2018 conference in Manchester. The theme of this conference was improving healthcare, with a particular focus on technology and how it can help health outcomes. Patient involvement in activities such as this can help shape discussion as well as keep...

  • Please see attached a copy of the report from the European Network of Fibromyalgia Associations (ENFA) Conference held in Malta this May, which Simon Stones attended on behalf of FMA UK.   

  • How pain’s unpredictability can affect interpersonal relationships, and recognising help when it appears. With between one third and one half of people living with chronic pain in the UK alone, the number of people experiencing the effects of pain explodes when considering family and friendships. For some of these people, life...