Category: Meetings

Des opened the meeting, and welcomed the new members.   Leaflets, handouts and books were made available for members to have a look at/take away, including the ARC booklet on Sjogrens Syndrome, which some people with fibromyalgia also suffer from.

Discussion took place on research into fibromyalgia, and Des spoke of work that has been done in Liverpool using functional MRI scans to look at levels of brain activity, similar to research done previously in the states. Discussion also took place on accessibility of medication through GP’s.

Phil asked what happens next after you are discharged from Pain Clinic?   Next step would be to return to your GP and ask for further help.   It may be helpful to refer them to the EULAR Recommendations if they are unsure what other help/medications may be used.   Strong opioids are not recommended for use with fibromyalgia, even though many people are prescribed these.

Read more: Report of Meeting 20th Sep 2010
 
Category: Meetings

Matters Arising from last meeting

Bank Account

Hazel, Allan & Phil were going round to bank with completed form and their ID after the meeting. This meant when Sara returned from England, she could take her ID to the bank and the account processed.

Weekly Donations/Donation to Cathedral

£14.45 received from members. £10.00 will go to the Cathedral as donation for the room, with the remainder to group funds. A donation of £50.00 has been given to the group by Des’ partner Fiona, as thanks to Allan for taking photographs for her.

Read more: Report of Meeting 16th Aug 2010
 
Category: Meetings

Walking directions from Gilmour street to St Mirin Catherdral.

Photo of the Parish Hall (Red Arrow) and walking directions and how to get into the car park on the right.

(Larger Image)

 

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • Dehaan Van-Evelingen and Cara Watson-Hunt are planning a couple of fundraising and awareness raising events for FMA UK, one of which is for International Awareness Day on 12th May. Cara's mum has fibromyalgia and because of this they are wanting to raise as much awareness as possible. First - they are...

  • Sal win go on a 700 miles bus trip using her disability bus pass to help fellow fibromyalgia sufferers.  To donate visit Sal’s GoFundMe page: https://www.gofundme.com/headsquirrels Read Sal's inspiring story: ‘’I’m going to be taking to the roads from the 1st to the 7th July, travelling from Northampton to the Scottish Border...

  • Lori Hutton will run her first half-marathon because her Mum lives with fibromyalgia. Lori told us about the reasons why she decided to go for this challenge: ‘’It's heartbreaking watching someone you love struggle with chronic pain. My mum spends every day in pain and some days can't even summon...