Category: Meetings

Des opened the meeting, and welcomed the new members.   Leaflets, handouts and books were made available for members to have a look at/take away, including the ARC booklet on Sjogrens Syndrome, which some people with fibromyalgia also suffer from.

Discussion took place on research into fibromyalgia, and Des spoke of work that has been done in Liverpool using functional MRI scans to look at levels of brain activity, similar to research done previously in the states. Discussion also took place on accessibility of medication through GP’s.

Phil asked what happens next after you are discharged from Pain Clinic?   Next step would be to return to your GP and ask for further help.   It may be helpful to refer them to the EULAR Recommendations if they are unsure what other help/medications may be used.   Strong opioids are not recommended for use with fibromyalgia, even though many people are prescribed these.

Read more: Report of Meeting 20th Sep 2010
 
Category: Meetings

Matters Arising from last meeting

Bank Account

Hazel, Allan & Phil were going round to bank with completed form and their ID after the meeting. This meant when Sara returned from England, she could take her ID to the bank and the account processed.

Weekly Donations/Donation to Cathedral

£14.45 received from members. £10.00 will go to the Cathedral as donation for the room, with the remainder to group funds. A donation of £50.00 has been given to the group by Des’ partner Fiona, as thanks to Allan for taking photographs for her.

Read more: Report of Meeting 16th Aug 2010
 

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • First of all, I would like to share with you the news the charity is moving into a new office. Over the last year the charities staff has grown by 100% and the current office was feeling a bit cramped. Our new office is just across the hall and is...

  • Awareness week has ended, and we’ve now got the chance to look back on what was a busy week for the charity. This year, we used our social media platforms to post a lot of content to increase awareness of both fibromyalgia and the charity. We collected several case studies from...

  • I want to support FMA UK because this is a really chronic condition that causes pain all over the body. It affects so many people from Lady Gaga to my mum. And that's the reason for my support and wanting to raise awareness. Personally, it doesn't affect me but when...