Category: Meetings

Discussion on Advice Works providing information that FM is not recognised by the government, and there is no category or box that FM falls under. ESA decision is based on how your condition affects you, and what you are capable of doing Discussed possibility of sending letter or email to advice works with feedback that FM is relevant for ESA claims

New member was welcomed and short round the table introductions

Advised that the hydrotherapy at the hospital is closed at moment, possible due to building works going on in building

As today is the 2nd birthday of group ... to celebrate occasion, sandwiches and cakes and opportunity for members to chat and socialise with each other

Benefit advice available via FMA UK website, and FMA UK have their own Benefits advice advisor, Janet Horton, who is available via PM through the forums or by telephoning the benefits helpline. Copies of the Benefits & Works guidelines to completing benefits forms, appealing etc can be obtained by getting in touch with Janet, providing your email and details of the guide you require. (FMA UK BENEFIT HELPLINE: 0844 887 2450 Mon, Wed, Fri 10.00-12.00)

Card for using toilet - explains you have a medical condition and need to use toilet urgently

Radar keys -access disabled toilets. Can be bought direct from Radar (£2.25 + £1.75 postage - http://www.radar-shop.org.uk/Detail.aspx?id=0)

Des spoke about an article where a doctor was recommending that pain meds should be swapped around ie tramadol one month; codiene the next month – as this may work more efficiently for some people, and prevent them becoming tolerant of one drug and it not working as well.

BBC One Show – featured a programme on pain. The were carrying out MRI studies showing pain levels, they then played music for distraction and pain showed up less. Also featured was a pain management programme – in England, ran as an 8 weeks inpatient course – which was found to be beneficial

The Pain Management Team for Greater Glasgow & Clyde based at Victoria Infirmary run a 12 week Pain Management course, however, referral onto this is only available through a Pain Clinic Consultant.

 
Category: Meetings

Opening of Meeting

Des opened the meeting, welcoming everyone.   He re-iterated that group members and the majority of our speakers are not from a medical background.   Any treatments or changes to medication etc, should only be done with the approval of your GP or other health professional. He reminded everyone of the group’s confidentiality policy – what is said within the group stays within the group. This allows people to speak freely, knowing that what they say will go no further.

Read more: Report of Meeting 21st Feb 2011
 
Category: Meetings

Opening of Meeting

Des opened the meeting, welcoming everyone especially our new members. For those who didn’t know, he explained the ‘donation cup’, as the group has no membership fee the group asks for a monthly donation (£1) to help towards the cost of the hall (donation to the Cathedral only) and tea, coffee etc.   We have also moved into the smaller hall over the winter, so we should find it warmer.

This month, our speaker is arriving earlier than usual therefore we will have our speaker, then deal with other business.. This months speaker is Sandra Bramma, Disability Employment Adviser.

Read more: Report of Meeting 15th Nov 2010
 
Category: Meetings

Opening of Meeting

A warm welcome to everyone to the first Paisley FM Support group meeting of 2011.

Finance/Fundraising

Member donations received towards hall costs etc.

Posters, Awareness & Media

Posters

Posters are available on the resource table, or can be downloaded direct from the website (www.paisleyfm.org)   FMA UK leaflets are also available.

Read more: Report of Meeting 17th Jan 2011
 
Category: Meetings

Opening of Meeting

Meeting opened with a general welcome to everyone, and especially to our new members.

Attention drawn to the Resources table, which will be available each month with FMA UK leaflets & booklets; FMA UK merchandise such as pins, ribbons, ducks etc for sale; Fibro Focus magazine subscription forms; also other information that will be of use to people with fibromyalgia.

Added this month are handouts: What is Fibromyalgia, Fibromyalgia & Weight Gain, What Your Dentist Should Know About FMS & CMP, What Your Eye Doctor Should Know about FMS & CMP and Guidance for Fibromyalgia Patients Who Are Having Elective Surgery.   Anyone wishing a copy of a handout from the table please speak to a committee member.

Read more: Report of Meeting 18th Oct 2010
 

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • How can I get involved? Get involved on social media:  Add a Twibbon to your Facebook and Twitter profile pictures: http://twibbon.com/support/fight-fibro-2017 Join our Thunderclap on Facebook, Twitter and Tumblr: http://thndr.me/PQAxdt Spread the word by liking, sharing and retweeting our posts and videos on Facebook (@ukfibro) and Twitter (@fmauk) Take a selfie and post it on social media...

  • Lynsey Read-Edwards from Norfolk together with her husband Paul will walk 14 km from Dale Head to Catbells in Lake District on 23 September for FMA UK with the aim of raising £1,000. She has already raised £760. Lynsey told us: ‘’I wish to complete the challenge and raise awareness for Fibromyalgia...

  • Demi-Louise Bailey has contacted us with her story about competing in charity pageants, and is competing in Miss Voluptuous UK in September.  She tells us:  "I was diagnosed when I was 15 (2012)- at this time in my life I was practically immobile. I was forced out of school. I had...