Category: Meetings

 

5th Annual General Meeting - 15th June 2015

Allan welcomed all to meeting, and explained to new members about AGM

 

Secretary’s Report

The year since June 2014 has seen the numbers of Fibro PaIN members steadily increase, both in the amount of people attending the Paisley & Greenock support group meetings but especially so in the Facebook Group.  The facebook group has evolved from simply being a way for group members to keep in touch between meetings to providing a vital online support service for 100+ people in Renfrewshire, Inverclyde and surrounding areas.  For some, attending group meetings doesnt suit - and the group has enabled them to chat with others locally, and keep up to date with the latest fibromyalgia news.

 

We held 2 main fundraising events.  Our annual craft fayre/awareness event was held during Awareness Week in September and again proved to be popular and successful.  And in April, a can collection was held over a weekend in IKEA.  Both events raised approx £1000 between them.

 

Both Paisley and Greenock groups have had a variety of guest speakers along to their meeting over the year covering topics such as benefits and holistic therapies which may be beneficial to someone with fibro.

 

Looking forward - plans are starting to be put in place for this years Craft Fayre/Awareness Event (Post meeting note: due to circumstances outwith the groups control; the craft fayre is cancelled and a Charity Fashion Show being organised for Awareness Week)

 

FMA UK recently announced they would be merging with Fibro Action on 1st July 2015, although this should not have any significant impact on the general running of the group.

 

Treasurer’s Report

The group accounts work one year behind; therefore the accounts for  2013 have been approved, working on 2014 accounts to be sent for approval.

 

Fundraising is a challenge which faces the group every year.  Funding is required to cover basic overheads such as  liability insurance; hall hire; tea/coffee etc for group meetings

 

Bank Account:

May 14 - £50.00 in account

June 15 - £380.00in account and £550.00 to be banked by Des

 

Election of Trustees/Committee

The current Trustees/Committee all accepted to remain in office for a further year, and this was unanimously agreed by all in attendance.

 

Chair - Allan Borland

Secretary - Hazel Borland

Treasurer - Joanne Meikle

Committee - Amanda McKinlay

 

Steph Roy has offered to come onto the Committee as a new member.   Nominated by Allan Borland and seconded by Joanne Meikle.

 

Allan closed the AGM and continued with the general group meeting

 

Homeopathic hospital (Centre for Integrative Care)

Discussion took place between members on the service provided by the hospital.  The service promotes self management through a combination of treatments and techniques including homeopathic remedies,  mindful movement, acupuncture, heart math (mindfulness) and  pacing

 

If felt nececssary, there is opportunity to go into the hospital for a week where you will be assessed and have option of attending a programme of classes.

 

Joanne described this as “being in a bubble”

 

Any member interested can ask their GP for a referral

 

Amanda spoke about the “Well programme” - weekly programme of classes, one day a week for 4 weeks then a follow up appointment.  You also receive a manual to work through, which includes dvds to watch at home.

 

Hazel advised that there is a question mark over the future of the hospital due to health boards not providing the funding for patients to attend.   A petition to save hospital presented to the Scottish parliament Tuesday 9/6/15

Group acupuncture/relaxation workshops  Adele Logan has offered to run a 6 week series of workshops for group members which would involve a combination of acupuncture and relaxation.   The committee will look into finding out more, and getting numbers interested.

 

Massage  Discussion took place on different types of massage and how it may help.  Some people have found aromatherapy to be the best, while others recommend hot stones;

 

Art Therapy Amanda advised that she is currently doing a home study course for art therapy and may be looking for 'guinea pigs' to work with at some future date.


The next Paisley meeting is Monday 20th July 2015, 1.00pm, St Mirins Cathedral Parish Halls

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • How can I get involved? Get involved on social media:  Add a Twibbon to your Facebook and Twitter profile pictures: http://twibbon.com/support/fight-fibro-2017 Join our Thunderclap on Facebook, Twitter and Tumblr: http://thndr.me/PQAxdt Spread the word by liking, sharing and retweeting our posts and videos on Facebook (@ukfibro) and Twitter (@fmauk) Take a selfie and post it on social media...

  • Lynsey Read-Edwards from Norfolk together with her husband Paul will walk 14 km from Dale Head to Catbells in Lake District on 23 September for FMA UK with the aim of raising £1,000. She has already raised £760. Lynsey told us: ‘’I wish to complete the challenge and raise awareness for Fibromyalgia...

  • Demi-Louise Bailey has contacted us with her story about competing in charity pageants, and is competing in Miss Voluptuous UK in September.  She tells us:  "I was diagnosed when I was 15 (2012)- at this time in my life I was practically immobile. I was forced out of school. I had...