Category: Meetings


Radar Keys Radar Keys which are the special keys which fit many disabled toilets are now available to purchase at a cost of £3.00 each.   Anyone wishing to purchase a key can pay/collect from Group Meetings or from the office in Mile End

Actipatch We still have a small number of Actipatch trial samples.  Please contact Hazel if you are interested in trying one.

Seat Belt Assistor  The Ableworld Disability shop is selling a seat belt assistor, which attaches onto the seat belt and provides a handle for pulling the seat belt over.  The idea is that it helps prevent you having to twist round to bring the seat belt across your front.   They come in a pack of 2 and cost £2.99 and both Hazel & Nikola recommend them as helping

Information Pack Hazel brought along an Information Pack that has been put together by one of FMA UK’s support groups.  Discussion took place on whether a similar information pack would be beneficial for new members.   The committee will take this idea forward, but would welcome any suggestions/comments on what information new members would like to see included.

Guest Speaker: Anne Marie, Renfrewshire Carers Centre

some of the main points of Anne Marie’s talk are listed below.  This was an interesting talk, as not only do many of us have carers - but often we too are carers for other family members.   Thank you to Anne Marie for coming along and talking to us.

  • all workers within carers centre are voluntary and provide support to unpaid carers
  • wide variety of support, adults mainly also support groups for young carers 8-18 and young adults 18-25
  • advocacy worker; help write letters, fill in forms, attending meetings ie hospital discharge meetings; education law ie asn
  • emergency care plans - initially carers over age of 50.  set up plan for emergency caring situations
  • red card - similar to bank card - local emergency services trained to look for this card
  • stress big issue- Linked in with Cardonald college, stress management programme - 4 weeks assess at start then assess at end.   
  • counsellor -one afternoon a week at present
  • benefits advisor - Tuesday morning
  • carer - doesn't matter how many hours the person is caring for
  • volunteer project - befriending young people and adults
  • sitting in service; respite services for more complex needs
  • information worker - any questions/information relating to anything to do with caring or carers
  • carers training -  training courses throughout the year
  • mental health support work - if person cared for has mental health issues
  • carers information days
  • training - falls prevention workshop    
  • not for profit service - Care at Home - paid for care agency services
  • interest groups - craft group, make things to fundraise for centre
  • singing group -carers choir
  • phone, drop in or email to register as a carer
  • phone list - useful numbers for counselling; etc
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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • Please note that the benefits helpline will be closed on the following dates in June/July 2018  Friday 22nd & Monday 25th June 2018  Monday 02nd & Friday 06th July 2018 

  • Michal Gondolewski will cycle the RideLondon Surrey 100 in July '18 for Fibromyalgia Action because Fibromyalgia is not widely recognised. Michal raised £255 so far and is raising more funds to help the charity’s work. Michal told us: ‘’I have enjoyed cycling for many years but a couple of years ago, whilst going...

  •  ‘Dear Chronic Illness’ book features a collection of short letters written by young people, addressed to their long-term illnesses and impairments, detailing what they would like to say to them. The letters are not your typical sob stories, and provide a light-hearted and humorous commentary on the writers’ various experiences,...