Category: Meetings


Radar Keys Radar Keys which are the special keys which fit many disabled toilets are now available to purchase at a cost of £3.00 each.   Anyone wishing to purchase a key can pay/collect from Group Meetings or from the office in Mile End

Actipatch We still have a small number of Actipatch trial samples.  Please contact Hazel if you are interested in trying one.

Seat Belt Assistor  The Ableworld Disability shop is selling a seat belt assistor, which attaches onto the seat belt and provides a handle for pulling the seat belt over.  The idea is that it helps prevent you having to twist round to bring the seat belt across your front.   They come in a pack of 2 and cost £2.99 and both Hazel & Nikola recommend them as helping

Information Pack Hazel brought along an Information Pack that has been put together by one of FMA UK’s support groups.  Discussion took place on whether a similar information pack would be beneficial for new members.   The committee will take this idea forward, but would welcome any suggestions/comments on what information new members would like to see included.

Guest Speaker: Anne Marie, Renfrewshire Carers Centre

some of the main points of Anne Marie’s talk are listed below.  This was an interesting talk, as not only do many of us have carers - but often we too are carers for other family members.   Thank you to Anne Marie for coming along and talking to us.

  • all workers within carers centre are voluntary and provide support to unpaid carers
  • wide variety of support, adults mainly also support groups for young carers 8-18 and young adults 18-25
  • advocacy worker; help write letters, fill in forms, attending meetings ie hospital discharge meetings; education law ie asn
  • emergency care plans - initially carers over age of 50.  set up plan for emergency caring situations
  • red card - similar to bank card - local emergency services trained to look for this card
  • stress big issue- Linked in with Cardonald college, stress management programme - 4 weeks assess at start then assess at end.   
  • counsellor -one afternoon a week at present
  • benefits advisor - Tuesday morning
  • carer - doesn't matter how many hours the person is caring for
  • volunteer project - befriending young people and adults
  • sitting in service; respite services for more complex needs
  • information worker - any questions/information relating to anything to do with caring or carers
  • carers training -  training courses throughout the year
  • mental health support work - if person cared for has mental health issues
  • carers information days
  • training - falls prevention workshop    
  • not for profit service - Care at Home - paid for care agency services
  • interest groups - craft group, make things to fundraise for centre
  • singing group -carers choir
  • phone, drop in or email to register as a carer
  • phone list - useful numbers for counselling; etc
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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • How can I get involved? Get involved on social media:  Add a Twibbon to your Facebook and Twitter profile pictures: http://twibbon.com/support/fight-fibro-2017 Join our Thunderclap on Facebook, Twitter and Tumblr: http://thndr.me/PQAxdt Spread the word by liking, sharing and retweeting our posts and videos on Facebook (@ukfibro) and Twitter (@fmauk) Take a selfie and post it on social media...

  • Lynsey Read-Edwards from Norfolk together with her husband Paul will walk 14 km from Dale Head to Catbells in Lake District on 23 September for FMA UK with the aim of raising £1,000. She has already raised £760. Lynsey told us: ‘’I wish to complete the challenge and raise awareness for Fibromyalgia...

  • Demi-Louise Bailey has contacted us with her story about competing in charity pageants, and is competing in Miss Voluptuous UK in September.  She tells us:  "I was diagnosed when I was 15 (2012)- at this time in my life I was practically immobile. I was forced out of school. I had...