Category: Meetings

Notice of AGM - Monday 18th July 2016 

This years AGM will take place on Monday 18/07/16 at the Paisley group meeting.   The AGM is a formal procedure required as part of our Constitution and to comply with OSCR  charity requirements.  The AGM follows the format of a report on the group over the past year, accounts report and the re-election of the trustees and committee members.   

Members are welcome to put forward nominations for a position on the committee, or to become an ordinary committee member.  If more than one nomination received for any position, it will be put to a vote of members present. 

Current trustees/committee members are 

Chair: Allan Borland
Secretary: Hazel Borland
Treasurer: Joanne Meikle
Committee Members: Des Quinn, Amanda McKinlay, Steph Roy

 
Category: Meetings

 

5th Annual General Meeting - 15th June 2015

Allan welcomed all to meeting, and explained to new members about AGM

 

Read more: 5th Annual General Meeting - 15/06/15
 
Category: Meetings

Radar keys available to purchase.  Radar keys allow you to access disabled toilets, fitted with Radar locks throughout the UK .  Cost of key £3.00

FMA UK stamp appeal - If anyone receives letters with stamps, can you please keep the stamps for FMA UK.   Collected stamps can be brought to future group meetings, or sent into the office at Mile End

FMA UK Telephone Helpline. - FMA UK are looking for new volunteers to help man the National Helpline.   Volunteers do 3 hour slots, Mon - Fri 10.00-4.00 (am slot 10.00-1.00 and pm 1.00-4.00).  Volunteers are able to choose the time of day that suits, and also suitable dates each month.  The helpline number is redirected to your home landline number.   Anyone interested, please contact Hazel in first instance.

Fibro PaIN AGM  - Our June meeting will be our 5th birthday, and also will be our Annual General Meeting.   This is where a short report on the year and what the group has done, also how the group is financially.   This is also when our committee is elected.   Should anyone be interested in being involved in the running of the group, please speak to Hazel.   

Committee meetings are held a few times a year as required, usually in the Mile End office, with short informal meetings sometimes held after group meetings.

Evening Social Meeting - our next evening meeting is planned for Tuesday 26th May 2015, in Canal Station Bar, Stow Brae, Paisley at 7.00pm (we are usually in the conservatory area at the back)

Mobility Roadshow - Joanne and Geraldine both had been at the Arnold Clark Mobility roadshow earlier in the month.    Joanne brought brochure for Mobility Solutions, Glasgow - a disability shop which is  larger than Paisley shop. They also do wheelchair and scooter hire.  

Hazel advised that shopmobility and Paisley disability shop also hire out wheelchairs and scooters.

Meeting dates - a request was made to keep meeting pages pinned at top of page on facebook group.  Hazel agreed this would not be an issue, and also that the main Fibro PaIN website had dates for the entire year.   There are also printed dates available on the resource table.

Guest speaker - Adele Logan, reflexology

Adele started off with a short introduction of herself.

She briefly explained how reflexology is an energy therapy and works with the energy of the body

After an interesting talk on how the areas of the feet correspond to the full body, and ways in which reflexology can help; Adele finished off by showing the group a few hand  and ear points which you can use at home to treat yourself.  

Next meeting our next Paisley meeting is Monday  15th June 2015

Post Meeting Note:

FMA UK have announced that they are merging with FibroAction, another UK fibromyalgia charity.  This will have no effect on the running of the group and full details are available on the FMA UK website.  www.fmauk.org

 
Category: Meetings

Notice is given that the Fibro PaIN Annual General Meeting will take place on Monday 15th June 2015 at the group meeting in St Mirins Cathedral Parish Halls.

The AGM will be a short report on the Groups activities, summary of group funds and re-election of Committee members for another year.

Anyone who would like to become more involved in the running of the group can be nominated for the Committee. Nominations should be submitted to Hazel by Friday 12th June 2015 by email to This email address is being protected from spambots. You need JavaScript enabled to view it.

 
Category: Meetings


Radar Keys Radar Keys which are the special keys which fit many disabled toilets are now available to purchase at a cost of £3.00 each.   Anyone wishing to purchase a key can pay/collect from Group Meetings or from the office in Mile End

Actipatch We still have a small number of Actipatch trial samples.  Please contact Hazel if you are interested in trying one.

Seat Belt Assistor  The Ableworld Disability shop is selling a seat belt assistor, which attaches onto the seat belt and provides a handle for pulling the seat belt over.  The idea is that it helps prevent you having to twist round to bring the seat belt across your front.   They come in a pack of 2 and cost £2.99 and both Hazel & Nikola recommend them as helping

Information Pack Hazel brought along an Information Pack that has been put together by one of FMA UK’s support groups.  Discussion took place on whether a similar information pack would be beneficial for new members.   The committee will take this idea forward, but would welcome any suggestions/comments on what information new members would like to see included.

Guest Speaker: Anne Marie, Renfrewshire Carers Centre

some of the main points of Anne Marie’s talk are listed below.  This was an interesting talk, as not only do many of us have carers - but often we too are carers for other family members.   Thank you to Anne Marie for coming along and talking to us.

  • all workers within carers centre are voluntary and provide support to unpaid carers
  • wide variety of support, adults mainly also support groups for young carers 8-18 and young adults 18-25
  • advocacy worker; help write letters, fill in forms, attending meetings ie hospital discharge meetings; education law ie asn
  • emergency care plans - initially carers over age of 50.  set up plan for emergency caring situations
  • red card - similar to bank card - local emergency services trained to look for this card
  • stress big issue- Linked in with Cardonald college, stress management programme - 4 weeks assess at start then assess at end.   
  • counsellor -one afternoon a week at present
  • benefits advisor - Tuesday morning
  • carer - doesn't matter how many hours the person is caring for
  • volunteer project - befriending young people and adults
  • sitting in service; respite services for more complex needs
  • information worker - any questions/information relating to anything to do with caring or carers
  • carers training -  training courses throughout the year
  • mental health support work - if person cared for has mental health issues
  • carers information days
  • training - falls prevention workshop    
  • not for profit service - Care at Home - paid for care agency services
  • interest groups - craft group, make things to fundraise for centre
  • singing group -carers choir
  • phone, drop in or email to register as a carer
  • phone list - useful numbers for counselling; etc
 

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FMA UK Website Articles

Fibromyalgia Action UK is a registered charity administered primarily by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
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